I relate too much to your experience. My son is disabled and has countless hospitalizations behind him. Back when he was a small boy I was encouraged to join a support group for parents of children with his disability - Spina Bifida. The stories of children who were doing better than my son upset me, the stories of those doing worse even more so. I couldn’t connect with these mothers, didn’t want to connect with them, and much later wished that I had because no one understands like someone who is going through the same experience. That was many years ago, he turned 53 last fall. The challenges continue, the hospitalizations occur with less regularity and it’s been a difficult but such a rewarding journey. Thank you for your beautiful and inspiring essay.
I relate too much to your experience. My son is disabled and has countless hospitalizations behind him. Back when he was a small boy I was encouraged to join a support group for parents of children with his disability - Spina Bifida. The stories of children who were doing better than my son upset me, the stories of those doing worse even more so. I couldn’t connect with these mothers, didn’t want to connect with them, and much later wished that I had because no one understands like someone who is going through the same experience. That was many years ago, he turned 53 last fall. The challenges continue, the hospitalizations occur with less regularity and it’s been a difficult but such a rewarding journey. Thank you for your beautiful and inspiring essay.
So freaking visceral and beautiful, your words💕💕💕
Wow, I loved hearing you read this. I can relate to returning to the hospital and feeling an odd sense of homecoming.
Beautifully conveyed ❤️
Beautiful Alexa. I always love hearing you read. Thank you so much. 🙏♥️
i'm so moved by this one, ed. just beautiful, haunting, profound...
Such beautiful writing ❤️
Beautiful, as always!